As a CHD parent, the director of a CHD organization and the founder of A Day for Hearts ~ Congenital Heart Defect Awareness Day, I am disgusted by another well known and established organization.
They have taken ideas from every CHD organization and tried to make them their own. They have tried to overtake other orgs. They have underhandedly (word?) gone to members of orgs and sweet talked and coerced them into joining their cause.
How can this be??? This is just absolutely disgusting and they should be held accountable for their sneaky underhanded methods.
Why do CHD families not trust them??? They hold the answer.
Maybe they should learn how to work TOGETHER and realize this is not all about money or who is the best. It's about CHD Awareness, Research, Education and Support!